If you feel alone in your experience with metastatic breast cancer (MBC) – as a patient or a caregiver – you’re not. Around the world, people like you are facing physical, emotional and socio-economic challenges posed by living with MBC. Here are some of those voices, unfiltered.

Real Talk

When people talk about cancer, they might be more comfortable talking about stories of remission and survivorship. However, there are struggles alongside hope – and specifically for the MBC community, the reality of living with advanced disease can be challenging. But it’s possible to be open about the struggles and the hopes of living with MBC.​

I want to grow old, but I don't know when cancer will end my life. So, I choose to focus on right NOW. I am very much alive and there's clarity in how I want to live the rest of my life.

JASMINE

I have a lot of strength, I have a lot of faith.

BETH

Click to watch Naomi


Naomi discusses her role as a patient advocate and the unique challenges facing the MBC community.

I am personally committed to getting underserved and Black communities the quality of care they need – and my desire to advocate for Black people with MBC has only grown since my own diagnosis.

SHONTE

Click to watch Svetlana


Svetlana shares how an MBC diagnosis changed her outlook on life and how she advocates for others living with this challenging disease.

I started paying attention to my needs. I learned how to voice my wishes, to let others know what I want.

Svetlana

I am the CEO of my health. I’ve made it my full-time job to care for myself.

Stephanie

I am soaking up every moment,
enjoying my life.

Annie

The moment you hear the news that you have metastatic cancer, it’s a shock and you feel betrayed and emotionally broken.

Beth

A SHARED JOURNEY​

While each person living with MBC experiences a variety of different challenges, there are also common themes across this experience – telling family and friends about a diagnosis and managing their emotions, advocating for the best care and managing a ‘new normal’ in your work and social life are a few. Here are some unfiltered perspectives on the role your community plays in MBC.​

I had been responsible for so many things and so many people – for other people, not for myself. I got this feeling – I even felt a sort of wind in my hair – because I could let myself have some rest, I could let myself fulfill some small wishes, and that was another motivation to go on.

Svetlana

Click to watch Beth


Beth shares how her daughter’s support and her passion for futebol (soccer) give her strength to live her fullest life with MBC.

What will happen to my job? How am I going to get the money for treatment? How am I going to tell my family?

Naomi

Because MBC is chronic and incurable, you have to build your village beyond just your partner – then lean on them to help you in the ways they are best equipped.

Shonte

Patients need to ask for help. Don’t feel ashamed to depend on people – it’s important to depend on others.

Naomi

My daughter has been my companion through thick and thin. I joke that she’s my therapist.

beth

So many patients feel isolated from others because our society doesn’t like the word cancer – it implies death, it’s a difficult subject. We all want to be happy and healthy.

Svetlana

My relationship with horses helps me be present with the metastatic breast cancer diagnosis in a real and vulnerable manner.

Tara

STRUCTURAL BARRIERS TO CARE AND DIAGNOSIS IN THE DEVELOPING WORLD1
  • Inadequate information about prevention
  • Lack of screening options
  • Absence of treatment options
READ MORE ON
GLOBAL PREVALENCE
THE MBC COMMUNITY NEEDS MORE RECOGNITION AND SUPPORT
Recent surveys of people with MBC found that over 85% do not feel included in the "pink ribbon" breast cancer initiatives2
    READ MORE ON
    U. S. PREVALENCE
    GLOBAL DISPARITIES IMPACT ACCESS TO CARE
    • Wealthier countries in Europe have better access to care3
    • Rural areas of China have limited screening options4
    • Uninsured women in the U.S. have a greater chance of being diagnosed with advanced breast cancer5
    READ MORE ON
    GLOBAL DISPARITIES
    RACE PLAYS A PART IN DISPARITIES IN THE U.S.
    Black women diagnosed with breast cancer are more likely to be diagnosed later, and die from the disease, than Hispanic or white women6
      READ MORE ON
      U. S. DISPARITIES

      Honestly Spoken

      Being equipped to build a care team and to ask the right questions about treatment and care can make a powerful and positive impact on the MBC journey. Information can help create a better understanding of disparities faced by the MBC community, and resources from advocacy groups provide this community with support and recognition.

      Watch Caring
      for Our Caregivers


      Hear about the critical role of caregivers and experts in supporting people with MBC – and the importance of taking care of caregivers

      The Honestly Spoken video series was developed in collaboration with


      In collaboration with advocates

      We appreciate the input of the following organizations in the development of the content presented on this website.


      Community Resources

      There are a number of organizations dedicated to providing information and support to people living with metastatic breast cancer. This listing is provided as a resource only and does not constitute an endorsement by Sanofi Genzyme of any particular organization or its programming. Additional resources on this topic may be available and should be investigated. Sanofi Genzyme does not review or control the content of non-Sanofi Genzyme websites.

      ABC GLOBAL ALLIANCE
      View Resources
      CANCER SUPPORT COMMUNITY
      View Resources
      CANSOL CANCER SOLUTIONS
      View Resources
      SALUTE DONNA ONLUS
      View Resources
      EUROPA DONNA
      View Resources
      EUROPEAN CANCER PATIENT COALITION
      View Resources
      FEDERACION ESPAÑOLA DE CANCER DE MAMA
      View Resources
      LIVING BEYOND BREAST CANCER
      View Resources
      THE MALE BREAST CANCER COALITION
      View Resources
      RUSSIAN CANCER PATIENTS ASSOCIATION "ZDRAVSTVUY"
      View Resources
      SHARE CANCER SUPPORT
      View Resources
      SHARESHERET
      View Resources
      SUSAN G.
      KOMEN
      View Resources
      TIGERLILY FOUNDATION
      View Resources

      1 El Saghir, N. S., et al. Breast cancer management in low resource countries (LRCs): consensus statement from the Breast Health Global Initiative. The Breast. 20:S3-S11 (2011) 2 MBC Alliance Survey Results. https://www.mbcalliance.org/survey. Accessed February 2021 3 European Commission. Breast Cancer Burden in EU-27. https://ecis.jrc.ec.europa.eu/pdf/Breast_cancer_factsheet-Oct_2020.pdf. Accessed March 11, 2021 4 The Economist Intelligence Unit. Breast cancer in Asia 5 C. DeSantis, A. Jemal and E. Ward, “Disparities in breast cancer prognostic factors by race, insurance status, and education,” Cancer, vol. 21, no. 9, pp. 1445-50, 2010 6 American Cancer Society. Cancer Facts and Figures For African Americans 2019-2021. https://www.cancer.org/content/dam/cancer-org/research/cancer-facts-and-statistics/cancer-facts-and-figures-for-african-americans/cancer-facts-and-figures-for-african-americans-2019-2021.pdf. Accessed March 1, 2021